What happens if you cannot move anymore?

For people living with a severe, autoimmune, neuromuscular condition like CIDP (Chronic Inflammatory Demyelinating Polyradiculoneuropathy), this isn’t a distant fear. The struggle to move freely is a daily reality.

Mobility is not just about walking. It’s about independence, choices, and identity. Yet, when symptoms flare unpredictably, that freedom can vanish overnight.

That is why we are launching Dare to Move, an initiative designed to create a space for connection, support, and shared experiences around mobility and severe autoimmune diseases.

Dare to Move:
Join a community that gets it

Living with CIDP means facing daily questions: How do I adapt my home? Can I still work? What is going to happen?

The answers aren’t always in a medical textbook; they are in the lived experience of others.

Dare to Move brings together people across Europe to share practical advice, lived experiences, and real-life ways of navigating mobility challenges day by day.

From June 2026 onwards, the initiative will unfold through public awareness activations, patient stories, and discussions culminating in European roundtables in Brussels this September.

Be part of the conversation and subscribe to receive updates, activities, and key outcomes from the initiative.

Subscribe now

The reality behind the acronym CIDP

For people living with CIDP, mobility is far from guaranteed. This severe autoimmune disease occurs when the immune system attacks the peripheral nerves, causing progressive muscle weakness (1,2). The impact on daily life is profound:

62%

struggle to walk outdoors or are unable to do so at all. (3)

82%

see their social life affected by the condition, often leading to isolation. (4)

29%

rate their mental health as “poor” or “fair” (3).

Listen to the voices breaking the silence

They declared me completely incapable.

Alejandra
Living with CIDP

Get more testimonials

Close-up of a person holding their forearm because of muscle weakness and discomfort

COMING SOON

A dedicated platform
for people living
with CIDP

Be the first to know

We know that "just rest" isn’t always the answer.

That’s why we’re currently building a new website dedicated to practical, lived-experience advice.

From adapting your nutrition to managing fatigue at work, we are curating guides written by and for people who know exactly what it feels like. You will also find authentic stories and testimonies from the ones directly affected by CIDP, as well as useful community resources.

Notify me when we launch

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References

Johns Hopkins Medicine. Available at: https://www.hopkinsmedicine.org/health/conditions-and-diseases/chronic-inflammatory-demyelinating-polyradiculoneuropathy (last accessed May 2026)
WebMD. Available at: https://www.webmd.com/brain/what-is-cidp (last accessed May 2026)
Paci S et al. CIDP patients’ health-related quality of life, daily activities and fatigue: results from a multinational real-world survey. argenx BV, Services in Health Economics (SHE) BV, Adelphi Real World; 2025.
Adelphi CIDP DSP Real World Evidence Generation, June 2024.